Membership Organizations
Working Together to Expand the Visibility of Skin Disease
The Coalition of Skin Diseases (CSD) advocates on behalf of individuals with skin diseases. The CSD supports basic scientific and clinical research, fosters physician and patient education, generates awareness of skin diseases, and unifies member organizations through the sharing of mutual concerns.
A Children’s House for the Soul
achildrenshouse.orgWho we areA Children’s House For The Soul – A community for those with skin conditions and birthmarks. MissionTo empower,…
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Allergy & Asthma Network
allergyandasthmanetwork.orgThe mission of Allergy & Asthma Network is to end the needless death and suffering due to asthma, allergies, and…
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Autoimmune Association
autoimmune.orgThe Autoimmune Association leads the fight against autoimmune disease by collaborating to improve healthcare, advance research, and support the community…
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Beautifully Unblemished
beautifullyunblemished.comWho we are Beautifully Unblemished Vitiligo Support Group, Inc. Mission To increase public awareness of Vitiligo and offer support services…
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Cutaneous Lymphoma Foundation
clfoundation.orgCutaneous lymphomas are types of non-Hodgkin’s lymphomas (NHL) that originate in the lymphocytes (white blood cells). Unlike most other types…
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Foundation for Ichthyosis & Related Skin Types (FIRST)
www.firstskinfoundation.orgIchthyosis is a family of genetic skin disorders characterized by dry, scaling skin that may be thickened or very thin….
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Foundation for Sarcoidosis Research (FSR)
www.stopsarcoidosis.orgThe mission of the Foundation for Sarcoidosis Research (FSR) is to find better treatments and potentially a cure for sarcoidosis. …
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Global Parents For Eczema Research
www.parentsforeczemaresearch.comOur Mission To dramatically improve quality of life for children living with eczema by advancing research that fills critical knowledge…
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Gorlin Syndrome Alliance
www.gorlinsyndrome.orgAbout Gorlin Syndrome or Basal Cell Carcinoma Nevus Syndrome Gorlin Syndrome (GS) aka Basal Cell Carcinoma Nevus Syndrome is a…
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HS Connect
www.hsconnect.orgHS Connect is a patient-led non-profit organization committed to connecting the Hidradenitis Suppurativa Community, including clinicians, with resources, support &…
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HS Foundation
www.hs-foundation.orgThe mission of the HS Foundation is to improve the lives of people affected by HS through advocacy, education, and…
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International Hyperhidrosis Society
www.sweathelp.orgHyperhidrosis is an idiopathic disorder of extreme, uncontrollable, episodic, and/or unexpected sweating beyond what’s “normal” or necessary to regulate temperature or…
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International Pemphigus & Pemphigoid Foundation
www.pemphigus.orgPemphigus and Pemphigoid (P/P) are defined as a group of life-threatening autoimmune blistering disorders characterized by acantholysis resulting in the…
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National Alopecia Areata Foundation (NAAF)
www.naaf.orgWhat is alopecia areata? Whom does this disease affect? Alopecia areata is an autoimmune skin disease resulting in the loss…
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International Topical Steroid Awareness Network
www.itsan.orgAbout Topical Steroid Withdrawal Syndrome: Topical Steroid Withdrawal Syndrome (TSW Syndrome), also known as Topical Steroid Addiction (TSA) or Red…
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National Eczema Association
www.nationaleczema.orgTypes of eczema Eczema is an umbrella term used to describe a group of medical conditions that cause the skin…
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National Foundation for Ectodermal Dysplasias (NFED)
www.nfed.orgWhat are Ectodermal Dysplasias? Ectodermal dysplasias are a diverse group of genetic disorders that involve defects of the hair, nails,…
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National Psoriasis Foundation
www.psoriasis.orgPsoriasis is not contagious. Psoriasis is a chronic immune-mediated disease, which according to the Journal of Psoriasis and Psoriatic Arthritis,…
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A congenital melanocytic nevus, also referred to as “CMN,” is a birthmark that is caused by the excessive accumulation of…
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Pachyonychia Congenita Project (PC Project)
www.pachyonychia.orgPachyonychia Congenita (PC)Prounounced “Pack-e-o-nik-e-uh Kun-jen-i-ta” About Pachyonychia Congenita (PC): PC is a chronically disabling, ultra-rare autosomal dominant skin disorder caused…
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Scarring Alopecia Foundation (SAF)
scarringalopecia.orgScarring alopecia or “cicatricial alopecia” refers to a diverse group of rare disorders that destroy the hair follicle, replace it…
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United Porphyrias Association
www.porphyria.orgThe United Porphyrias Association supports the patient and healthcare professional communities with diagnosis, management, and treatment of the porphryias. What…
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Vitiligo Support International
www.vitiligosupport.orgNon-Segmental Vitiligo (NSV) includes all types of vitiligo except segmental, such as focal vitiligo (pigment loss limited to one, or very few areas), acrofacial…
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XP Family Support Group
www.xpfamilysupport.orgThe XP Family Support Group is dedicated to improving the quality of life of those affected with Xeroderma Pigmentosum through…
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American Academy of Dermatology
www.aad.orgThe American Academy of Dermatology is the largest, most influential, and representative dermatology group in the United States. Find resources…
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Canadian Skin Patient Alliance
www.canadianskin.caWho we are: The Canadian Skin Patient Alliance (CSPA) is a national non-profit organization dedicated to advocate, educate and support…
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Derma Care Access Network
www.dermacareaccess.orgWho we are: Comprised of over 40 non-profit advocacy and professional organizations, The Derma Care Access Network (DCAN), is an…
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Dermatology Nurses’ Association
www.dnanurse.orgMission Statement: The Dermatology Nurses’ Association is a professional nursing organization comprised of a diverse group of individuals committed to…
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Global Vitiligo Foundation
globalvitiligofoundation.orgVitiligo is an autoimmune skin disease causing loss of pigment from areas of the skin, resulting in irregular white spots…
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Innovation and Value Initiative
www.thevalueinitiative.orgThe Innovation and Value Initiative Foundation, Inc. (IVI) is a 501(c)(3) nonprofit research organization whose mission is advancing the science of value…
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International Alliance of Dermatology Patient Organizations (IADPO)
www.globalskin.orgThe International Alliance of Dermatology Patient Organizations (IADPO, also known as GlobalSkin) is a unique global alliance that is committed…
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PeDRA
www.pedraresearch.orgThe Pediatric Dermatology Research Alliance (PeDRA) is a nonprofit research organization driven by the mission to create, inspire, and sustain…
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Skin of Color Society
skinofcolorsociety.orgThe Skin of Color Society utilizes research, education and collaborative partnerships to promote awareness of, and excellence within, skin of color…
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