Membership Organizations
Working Together to Expand the Visibility of Skin Disease
The Coalition of Skin Diseases (CSD) advocates on behalf of individuals with skin diseases. The CSD supports basic scientific and clinical research, fosters physician and patient education, generates awareness of skin diseases, and unifies member organizations through the sharing of mutual concerns.
The mission of Allergy & Asthma Network is to end the needless death and suffering due to asthma, allergies, and…
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AHSID Mission Statement: The Association of Hidradenitis Suppurativa and Inflammatory Diseases (AHSID) is a not-for-profit national patient advocacy organization improving…
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The Autoimmune Association leads the fight against autoimmune disease by collaborating to improve healthcare, advance research, and support the community…
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Who we are Beautifully Unblemished Vitiligo Support Group, Inc. Mission To increase public awareness of Vitiligo and offer support services…
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Cutaneous lymphomas are types of non-Hodgkin’s lymphomas (NHL) that originate in the lymphocytes (white blood cells). Unlike most other types…
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Ichthyosis is a family of genetic skin disorders characterized by dry, scaling skin that may be thickened or very thin….
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The mission of the Foundation for Sarcoidosis Research (FSR) is to find better treatments and potentially a cure for sarcoidosis. …
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Our Mission To dramatically improve quality of life for children living with eczema by advancing research that fills critical knowledge…
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Vitiligo is an autoimmune skin disease causing loss of pigment from areas of the skin, resulting in irregular white spots…
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About Gorlin Syndrome or Basal Cell Carcinoma Nevus Syndrome Gorlin Syndrome (GS) aka Basal Cell Carcinoma Nevus Syndrome is a…
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HS Connect is a patient-led non-profit organization committed to connecting the Hidradenitis Suppurativa Community, including clinicians, with resources, support &…
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The mission of the HS Foundation is to improve the lives of people affected by HS through advocacy, education, and…
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Pemphigus and Pemphigoid (P/P) are defined as a group of life-threatening autoimmune blistering disorders characterized by acantholysis resulting in the…
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About Topical Steroid Withdrawal Syndrome: Topical Steroid Withdrawal Syndrome (TSW Syndrome), also known as Topical Steroid Addiction (TSA) or Red…
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About LSSN’s Mission We are a not-for-profit organization whose mission is to empower people with Lichen Sclerosus by providing evidence-based…
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Who we areMade A Masterpiece – A community for those with skin conditions and birthmarks. MissionWe are a community for…
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While many individuals with albinism and vitiligo face a society that does not accept themand/or judges them badly because of…
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What is alopecia areata? Whom does this disease affect? Alopecia areata is an autoimmune skin disease resulting in the loss…
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Types of eczema Eczema is an umbrella term used to describe a group of medical conditions that cause the skin…
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What are Ectodermal Dysplasias? Ectodermal dysplasias are a diverse group of genetic disorders that involve defects of the hair, nails,…
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Psoriasis is not contagious. Psoriasis is a chronic immune-mediated disease, which according to the Journal of Psoriasis and Psoriatic Arthritis,…
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The National Scleroderma Foundation helps people living with scleroderma, their families and caregivers achieve a greater understanding of their disease,…
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A congenital melanocytic nevus, also referred to as “CMN,” is a birthmark that is caused by the excessive accumulation of…
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Pachyonychia Congenita (PC)Prounounced “Pack-e-o-nik-e-uh Kun-jen-i-ta” About Pachyonychia Congenita (PC): PC is a chronically disabling, ultra-rare autosomal dominant skin disorder caused…
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Scarring alopecia or “cicatricial alopecia” refers to a diverse group of rare disorders that destroy the hair follicle, replace it…
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The United Porphyrias Association supports the patient and healthcare professional communities with diagnosis, management, and treatment of the porphryias. What…
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Non-Segmental Vitiligo (NSV) includes all types of vitiligo except segmental, such as focal vitiligo (pigment loss limited to one, or very few areas), acrofacial…
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The XP Family Support Group is dedicated to improving the quality of life of those affected with Xeroderma Pigmentosum through…
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The American Academy of Dermatology is the largest, most influential, and representative dermatology group in the United States. Find resources…
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Who we are: The Canadian Skin Patient Alliance (CSPA) is a national non-profit organization dedicated to advocate, educate and support…
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Who we are: Comprised of over 40 non-profit advocacy and professional organizations, The Derma Care Access Network (DCAN), is an…
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Mission Statement: The Dermatology Nurses’ Association is a professional nursing organization comprised of a diverse group of individuals committed to…
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The Center for Innovation and Value Research Foundation, Inc. (CIVR) is a 501(c)(3) nonprofit research organization whose mission is advancing the science…
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The International Alliance of Dermatology Patient Organizations (IADPO, also known as GlobalSkin) is a unique global alliance that is committed…
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The Pediatric Dermatology Research Alliance (PeDRA) is a nonprofit research organization driven by the mission to create, inspire, and sustain…
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The Skin of Color Society utilizes research, education and collaborative partnerships to promote awareness of, and excellence within, skin of color…
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